Category Archives: Children

2012 Murray-to-Moyne Update:

Well the ride is now over… the riders and support crew are all back with their families. The riders will be sore, but hopefully not too sorry and the drivers and Hamilton camp team will be tired too. For a group of strangers to come together for 3 days and then travel 520 hard yakka kilometers is truly awe-inspiring.

You all say that it is nothing to do what you have done. Please be rest assured, you have made a huge difference in a little girls life, and our family is forever indebted to you xxxx

Our humble thanks to the Ride 4 Georgia team:

Sandro Ammann – Rider

Anthony Arthur – Support Crew (Hamilton)

Cameron Brown – Rider

Andrew Buckley – Support Crew (Driver)

Renate Crow – Rider

Simon Diner – Rider

Adam Gatherum – Rider

Nick Guerrine – Rider

Marcus Kunath – Rider

James Mackie – Support Crew (Driver)

Anthony McCormack – Rider

Chris Thornton – Rider

Craig Robinson – Rider

Jason Simmons – Rider

Chris Waixel – Rider & Organiser

Karen Waixel – Support Crew (Hamilton)

Wayne Waixel – Support Crew (Hamilton)

Matt Young – Support Crew (Hamilton)

—————————————————————————————————————-

Our daughter Georgia was born in December 2004.  She was born with part of her brain undeveloped, which resulted in severe sensory integration dysfunction and Cerebral  Palsy.  She is unable to walk or speak and has great difficulty with sensory feeling in her body.  It means that any daily function or movement is compromised and extremely difficult.  We, as parents can help her with specialised equipment and therapy to complete some day to day activities, but in reality, she will need full-time care for the rest of her life.

Some of the equipment and therapy that we require to help Georgia is extremely expensive, and the government assistance we currently receive is not nearly adequate to cover all of her needs.  Specialised positioning equipment is needed to ensure that Georgia’s spine and hips grow correctly to avoid surgical intervention as she ages.  This positioning and seating equipment also helps her to learn at school as she does not have to concentrate on controlling her body.

For the second year, we are, with the help of a family friend Chris Waixel entering a team of riders in the 2012 Murray-to-Moyne Cycle Relay.  The team of riders will travel from Echuca to Port Fairy over two days in an attempt to raise money for Georgia’s therapy and equipment costs.  Georgia currently is in Grade 1 in our local primary school and attends the Cerebral Palsy Education Centre’s extended care program for school aged children.  With the ongoing assistance of the wonderful therapists and staff at CPEC, we can continue to give Georgia a better quality of life. But we need help.

We are looking for sponsorship of the Ride4Georgia team, and also individual donations.  If you can help in any way, please click on the donate button. Please also pass this gofundraise site around to your friends and family – via Facebook, Twitter or email. For more insight into our world with Georgia, feel free to check out our blog at https://sgmackie2304.wordpress.com

Thank you so much!

Sue & Ken Mackie

CPEC Family Fun Day

Click to play this Smilebox photo album
Create your own photo album - Powered by Smilebox
This photo album customized with Smilebox

Today we enjoyed another lovely family fun day at CPEC.  It’s always a great opportunity to meet other families from CPEC who we haven’t met through our time there, particularly because most of the families who attended today were early intervention families.  There were baby farm animals, an Easter egg hunt, craft and painting activites plus a face painting fairy!  The weather was beautiful and we enjoyed a picnic lunch while the girls played in the cubby house at CPEC and enjoyed patting the animals.  Georgia & Sienna have both got a love of animals, and they always enjoy a chance to get up close with them even if the chicken did poop on Georgia’s tray and Sienna almost squashed one of the baby chicks…

 

AAARGH – Why do I bother?

Some days I wish I was a better parent.  Not one of those super-mum’s – which I don’t believe actually exist – but at least a parent that was a little more consistent.  But I must explain.  Next month is our 20 year anniversary and Ken and I are planning to stay in the Yarra Valley for an evening away from the girls.  Because the area we are staying is not totally familiar, I thought I would check out the restaurants and cafe’s in the area near by our B&B.   The plan was to go into Warburton, find the B&B and a few restaurant ideas, have a picnic lunch and a play on the playground before heading home again. But as I have been finding lately, these outings, which I think have been as much about me escaping as getting the girls out into the fresh air – are very frustrating. Continue reading →

A brand new start

Our little girl started primary school today.   Today, Georgia went off to school like any other 6 year old.  I am so thankful that the school we have chosen is very pro-active and inclusive.  So many of the schools that I have heard about have not been as welcoming to children with special needs and yet this school is looking forward to the challenge of helping Georgia to learn.  When it comes to decision making, I am one of those people who likes to prepare.  I investigate and analyse, research and finally make my choice.  It might take me longer than most, but when the decision is made I stick to it.  This is a good thing, usually, when you are making those decisions that are important.  Not such a good thing when you are talking about buying clothes (I usually decide that I like a ‘look’ two years after it’s in fashion – and then have trouble getting it!). Continue reading →

The Dreaded “S” Word – Seizure

Ever since Georgia was diagnosed, (see my Background Info and Diagnosis page) I have known that there was a chance that she may have seizures.  After all, most of the people we have met through early intervention who have kids with Cerebral Palsy say their child suffers from seizures, or Epilepsy.  Some only once or twice, but most have them quite often, and are on medication to prevent or deal with them. Georgia had never had a seizure in her 5 and a half years, and we had thought we were one of the lucky families that never had to deal with it.  On Sunday morning, it was our turn. Continue reading →